So Called ‘Recovery’.

Since this horrific journey began, so many unknown elements are being exposed to me.

Elements that seemed so acceptable and ‘normal’ (most disliked word now).

I read so many lived experience blogs and medical articles, some times, it feels as if the top of my head will lift off.

Professionals and non-professionals speak of ‘recovery’ for those of us who suffer mental illness.

I beg to differ strongly in the description of our individual experiences.

For many suffering mental illness, there will never be ‘recovery’.

It’s time society stops making these naive and, at times, patronising assumptions and statements.

We need to start treating mental illnesses as a cancer of the soul and mind. Not as if it is some mystical, untouchable, imaginary condition.

Robin Williams (may he rest in peace), is a prime example of a person with ‘soul and mind cancer’ (aka: mental illness), utilising many different methods of therapy and treatments, throughout his life. All of which most definitely contributed towards his life being extended to 63 years of age. If he tried coping without professional intervention, the educated assumption would be that his life would have ended many, many years (possibly decades) earlier.

 

I know of many friends who have been on medication for a long time and will probably be on them for the rest of their lives. I’m coming up to 3 years on my medications. They are keeping me alive, no doubt about it. If I stop taking them, my chances of dying increase greatly.

Now if we had Cancer and were taking medication or attending treatments to help us fight to remain alive, we’d be looked at as battlers and heroes.

But those of us with mental illness are looked upon as ‘weak and naive’ because we take medications which help us with our respective illnesses.

Also, just as Cancer can go into remission, so to it appears can depression and other mental illnesses. The treatments worked to give the sufferer a time of respite.

Then later something may trigger the mental illness and the fight is back on for survival.

Society needs to stop placing unrealistic expectations on people with mental illness (severe or otherwise). We already struggle with our inner demons enough, without having society expecting us to one day, ‘simply get better’.

I’m in the process now, of accepting the fact that my mental illnesses will be my lifelong companions. And as such there will be days we get along well and other days we hate each other desperately.

But recovery is a false dream for many of us, so stop shoving it down our throats.

 

‘Love Sometimes Comes Like a Dream & Leaves Like a Nightmare’

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3+ Years In. 

Most days our struggle is muted somewhat by work or ‘busy’ stuff. But it is never gone. 

The further away from that day our world imploded we get, the more difficult it becomes to survive. 

Our adjustment is a constant, organic thing. Our coping abilities are forever shifting, so we never reach a place of true peace. 

Or acceptance. 

This continuous need for adjustment is a huge part of why our energy is depleted so easily. And quickly. Grieving is a life long process, which takes a massive toll on the grieving individual. I feel guilty now, that I don’t wail outwardly every single day. 

But inside, I am howling like a banshee, just as I did when I first discovered Jaie had taken his own life. 

According to Gaelic lore, our family come from the Ó prefix. We originate from the insular Celtic lands. We have our own banshee. Our very own bean chaointe (keening woman).  This gives me some solace believing that she is still wailing the first death in 2 generations of Moran’s. I know I had to scream after learning of Jaie’s Suicide. It’s all I wanted to do. However I am the matriarch of our little family and had to care for those dependent upon me. So I let out my keening away from those I protect and kept/keep the lid clamped firmly closed around it. 

One thing I’ve noticed though, when I’m upset I generally begin letting this lid vent and I beg the universe for Jaie and his return. Very few people experience this level of devastation from me. Only the very trusted and true. Others may feel I’m trying to use my grief as a way to deflect from issues, but it’s not. I have to release that grief valve or I will not be able to function at ANY level. I do respond differently now, to issues with friends and family. 

This is another reason why I limit my contact with people. Not only am I aware I drain quickly, but I can also be a drain on others. 

Possibly as I progress along this grief journey I shall eventually be able to control my release valve better. But you know what? I’m human so tough luck for the rest of the world if I don’t. 

‘Love Sometimes Comes Like a Dream & Leaves Like a Nightmare’

Purgatory is Real …

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I struggle at times to explain how the loss of my child has impacted me, until this week.

I was looking recently into signing a contract for something which spread over several years and in the back of my mind, all I could think was this;

“Oh no! I cannot live that much longer without one of my children!”

This threw me for several days, however I do know that other mothers, sisters, brothers, fathers and partners totally comprehend what I am saying/thinking.

Purgatory is what every parent lives through once they have lost a child. Every single day requires a conscious choice to not only survive, but to thrive. No easy task when a portion of your soul is no longer with you physically.

Purgatory is when you simply wish to sleep (so long as there are no nightmares) to escape the nightmare that your life has become.

Almost 3 years since Jaie died and I still say to people, “I just do not understand how we got here? How it all came to this?”

I force myself to not cry because it is almost impossible to stop once I start. I just wish to find a dark hole to crawl into, curl up and never come out.

Medication can only do so much and the rest is on ourselves. Therapy helps as well, but I am certain that if I ever let anyone into my mind, they would run screaming from me and never see me again.

I would no longer be allowed to walk within the community. But then again I see what our so called justice system allows to remain around our communities so maybe I would still be  able to remain mainstream?

‘Love Sometimes Comes Like a Dream & Leaves Like a Nightmare’

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Child Loss Echoes on Forever …

‘Love Sometimes Comes Like a Dream & Leaves Like a Nightmare’

This quote was used on Jaie’s ‘Deed of Service’ at his funeral. Because indeed it felt, and still feels, this way. A child is meant to be a cause for joy and future preparations. Planning of weddings and family gatherings, not of choosing a casket and where to have their funeral.

Two years, 19 months and 9 days since Jaie died by suicide. Sometimes I do wonder how it would be to grieve for the loss of a child, without the added complication of suicide as the cause (please I am in no way trying to compare our grief with anyone else’s, it is simply a thought which occasionally passes through my mind)? 

Would I have coped ‘better’? Or just differently? Or is it truly what I believe in my heart that the manner in which Jaie died, while important in the grief journey in some ways, is irrelevant in others? Child loss is just that! LOSS!

It is this huge, gaping loss of someone who we have expected to share all of our past, present and future moments with, in one way or another. But we then feel the loss of our others children’s grief. We feel our hearts begin to bleed when they say or write how much they miss their ‘little brother’ or their ‘baby’s daddy’.

So we do wonder if there will come a point where your lives will begin to settle into a routine. A routine which shall always have that door which is slightly ajar, allowing thoughts of our loved one, to sneak out into our everyday lives. See this is also bittersweet, because while it hurts us, we have every right in the world to think and speak of our lost loved ones. No matter how they died. We are the Rememberers’ and that is what we shall continue to do.

The thoughts never stop racing through my mind, some days they are worse than others. Just as some days the triggers are far worse than others. No one understands the amount of energy it takes to just be ‘functioning’ in society. To be able to work and interact and talk and focus on my work load. But I will do it all happily, if it gives me just a few moments where I am not focused on how Jaie died and that he is actually dead. I take pride in producing top quality work and I want my participation in a job, to ensure that it makes someone’s life a bit more enjoyable or less stressful.

I am just rambling now. It is almost our 3rd christmas without Jaie and I am truly dreading it. Reality is like hindsight. A cruel and merciless beast. It shows no discretion or diplomacy, it simply is. We have no choice but to accept it or at least make out that we do, so the rest of the world can keep functioning as if nothing has changed. As if no one has had their ‘chain of life’ broken and discarded.

I am so tired and tortured and these are a non-stop battle. I am always both, to varying degrees. My pain never stops, it simply morphs occasionally to give me a moments respite.

Stay safe everyone <3.

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‘Love Sometimes Comes Like a Dream & Leaves Like a Nightmare’

“Are You Better Now?”

I had to return to my GP for a new referral to my psychiatrist. I had the Locum doctor who was obviously unfamiliar with my background.

While answering the standard questions about medications etc, another question was asked.

“Are You Better Now?”

And within seconds my eyes began to fill with tears and I took a deep breath before responding, “Well I do not cry every single moment of the day now.” And then the next 10 minutes of the appointment was spent trying to not cry because all I kept thinking was,

“How does anyone feel ‘better’ after child loss or losing a loved one?”

Because, no I am most certainly NOT feeling better. I am simply learning how to wear a mask and hide my emotions most of the time. I no longer struggle to hide my emotions from the general public, because most of the general public do not wish to see a woman sitting, drinking coffee, with tears streaming down her face. It makes them uncomfortable and wonder if I am about to leap up wielding a weapon and harming others. I can tell because of the looks of horror and uncertainty on their faces. As well as the fact I have had people move seats away from me lol.

Amazing that as a society we view genuine emotions with horror and discomfort, yet we encourage people to show a ‘strong face’ etc, in times of despair. Oh sorry, but my son died 2 1/2 years ago and you believe this to mean my feelings of despair should be over by now? Well let me tell you that I shall NEVER be over my feelings of despair and loss, regarding my child. And until or unless you experience this type of loss, you have NO RIGHT to expect me to meet your beliefs about this type of grief.

I am angry, so very angry. My son did not deserve to die how he did. My children did not deserve to lose their little brother. Jaie’s Fiancee and daughter did not deserve to lose him in any way.

So I am angry to be asked “Are you better now?” I am angry my baby is dead. I am angry his little girl will have no living memories of her daddy. I am angry that my eldest son spoke of everything being ‘tainted’ by Jaie’s death. I am angry that my daughter does not have an argument with her little brother, but in the next moment is defending him against  anyone else. I am angry that his Fiancee has been placed with so much sorrow and stress on her young shoulders. I am angry I couldn’t help my son.

But I am not angry with Jaie. I am simply devastated that my youngest child felt so bereft of hope he took his own life. I am saddened he did not realise that he had an illness which destroyed his mind and life. An illness which was manageable.

‘Love Sometimes Comes Like a Dream & Leaves Like a Nightmare’

Suicide is NOT a Joke!

Thank you to Jenn for her passion and dedication to this crusade. I struggle with jokes about suicide. I accidentally made a random comment a few weeks ago, that the moment it left my mouth I could have hit myself for it and I am a survivor of suicide.
Seemingly harmless statements and jokes, are not so harmless, when you consider for the approximately 1 million people who die by suicide each year, worldwide… There are millions of people left behind after their traumatic death, who love and adore them and we struggle to find our feet in a completely changed world.
This is shared from my Facebook wall July 23rd 2014 …

People tell me I get lost in my grief when I start to speak of Jaie and his death. They do not understand I am not ‘lost’ or ‘stuck’ in it. The grief is stuck in me. I have lost a part of my soul. And speaking of Jaie and how his loss is impacting me over time, helps me to accept this deep burden of loss. There is, quite literally, no way I can change,
A. How I feel
B. How it affects me
C. How much I miss my son (as do my other 3 children and granddaughter)
D. How long this takes. Because I will NEVER get over losing Jaie. Not in a million years.
E. That the loss of Jaie is SO painful and I am wounded so badly by his death, that walking away from anyone or anything who causes me stress or compounds my grief, is relatively easy.
F. Do not be afraid of not understanding this pain. Be grateful and respect that I AM.
G. You do NOT want to EVER feel this type of loss. But child loss especially.
So forethought and compassion when speaking needs to become second nature to ourselves. How about other people show the same respect and compassion as well…

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‘Sometimes Love Comes Like a Dream & Leaves Like a Nightmare’

The Life of a Suicide Loss Survivor

 ***WARNING*** This might be a “trigger” to suicide loss survivors.  I feel it is time I use MY voice on this topic. It is time that those that have not had to walk in our shoes, and I pray they never have to, maybe understand just for a moment how painful jokes about suicide truly are to a suicide loss survivor. I hope that maybe, just maybe, this will help to educate and make a difference. I hope this is shared  and that when it is read people will finally understand how something as simple as changing a few words in their vocabulary can literally change the entire day, or even days, of a suicide loss survivor. Ever heard of a thing called PTSD? Please educate yourself on it, it is not uncommon for suicide loss survivors to suffer with it. Something as simple as a “joke” could literally set…

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I Don’t Choose Depression… Depression Chooses me …

Well meaning loved ones and people with the very best intentions ask me if I am alright often, which makes me feel worse than I already feel because I cannot find the words or reasons why I feel so down.
This puts me into a cycle of feeling guilty for not being more productive and being in a better headspace than what I am. So I begin to feel even worse and eventually I end up crying or withdrawing even further into myself so that I will stop impacting those I love with my negativity.
Depression is not something I can just switch on or off. It is not something I choose to feel or not feel. It simply is what it is and I struggle everyday to some degree with feeling like crap …
Suicidal thoughts still cross my mind and suicide is most certainly not something I would ever want to do to my children, family and friends or followers … But it is my reality and by being aware and mindful of these thoughts and depressive states, is what helps me get through them safely …
Learning to speak with someone who I can trust and tell them the truth about what my depression and anxiety tells me and why I might be so quiet and not talking all that much. But it is still difficult to do this. I still stumble over telling them what is making me awkward and difficult to interact with …
I wish this was not how it is. I wish that none of this was real and that my brain could go back to where it once was and working how it once was …
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‘Love Sometimes Comes Like a Dream & Leaves Like a Nightmare’